Table of Contents

Introduction

1. What do we mean by “long term care?”

2. Overview of long term care services in Indiana

3. Assessing your loved one's needs

4. Finding Services

5. The Costs of Long Term Care and Paying for Services

6. Getting Good Care

7. Home Care: Information & Resources
A. Home Health Care
B. Personal Attendant Services

8. Adult Day Services: Information & Resources

9. Assisted Living: Information & Resources

10. Nursing Homes: Information & Resources

11. Hospice Care


12. Addressing Problems

13. Resources

14. Advocacy

 

 

Chapter 14

 

Indiana Advocacy

 

& Long Term Care

 

 

 

While progress has been made in creating a long term care system in Indiana that offers a wide range of readily-available, affordable, quality services, there is still a long way to go. Family caregivers who want to learn more about efforts to advance and improve Hoosier long term care services can contact the programs and organizations below.

Advocacy Organizations

Indiana

Most organizations that that advocate on behalf of senior citizens and persons with disabilities in Indiana are associated with national organizations. Only two organizations, United Senior Action and The Generations Project, exist solely in Indiana for the specific purposes of advocacy, education, and empowering Hoosiers to understand the issues that affect senior citizens and persons of all ages with disabilities.


United Senior Action of Indiana (USA)

www.usaindiana.org


USA is a statewide senior citizens advocacy organization that unites seniors and their families and other like-minded organizations into a powerful voice to impact public policy that affects our lives and our communities. USA works on issues such as nursing home quality and reform, alternatives to nursing homes (home and community-based care), Medicare, Social Security, and more.


Mailing Address :

P.O. Box 2922

Indianapolis, IN 46206


The Generations Project

www.generationsproject.org


The Generations Project was established in 2001 to call attention to the dilemma facing Hoosiers with long term care needs. A collaborative effort of leading senior, disability and consumer-based organizations, The Project seeks to educate citizens, advocates, and policy makers about the opportunities for Hoosiers to implement a balanced and responsible long term care system which includes a full array of home and community-based options.

 

Mailing Address:

One North Capitol Avenue

Suite 1025

Indianapolis, IN 46204

 

Area Agencies on Aging

http://www.in.gov/fssa/da/3478.htm

 

The 1973 amendments to the Older Americans Act created area agencies on aging (AAA). Among other responsibilities AAAs are charged by this federal law with advocating on behalf of the well-being of older adults, including commenting on every proposed statute or law that may have an impact on older citizens. AAAs can carry out their mandate by advocating with federal, state and local governments as well as with other community organizations.

 

Many other organizations advocate on behalf of seniors and persons with disabilities who need long term care. Here is a list of a few of them. Click on the names of the organizations to be connected to their web sites.

 

Organizations that Avocate for causes, programs, & people

AARP - Indiana

Alzheimer's Association

American Cancer Society - Indiana Action Center

American Heart Association

American Stroke Association

Center for Medicare Advocacy

Family Caregiver Alliance

Indiana Alliance of Retired Americans

Indiana Association of Area Agencies on Aging

Indiana Bran Injury Association

Indiana Minority Health Coalition

Medicare Rights Center

Mental Health America - Indiana

National Alliance for Caregiving

National Caregiving Foundation

National Consumer Voice for Quality Long Term Care

National Council on Aging - NCOA

National Family Caregivers Association

National Multiple Sclerosis Society

National Stroke Association

Parkinson's Action Network - Indiana

The Arc of Indiana

Well Spouse Association

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